The American Fibromyalgia Syndrome Association, Inc.

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AFSA is an all volunteer nonprofit organization dedicated to funding research that investigates the causes and treatments for fibromyalgia syndrome.

A 501(c)3 Nonprofit Charitable Organization.

About AFSA

The American Fibromyalgia Syndrome Association’s (AFSA) primary mission is to fund superior quality, scientific studies on fibromyalgia syndrome (FMS). Studies show that this extremely painful, fatiguing, and often debilitating medical condition affects 3 5% of the general population.

By stepping up research on the causes and treatments for fibromyalgia, AFSA and its generous contributors are working together to make a substantial difference in the lives of millions.

AFSA was formed as a 501(c)3 charity in 1994, at a time when the U.S. government was spending less than a penny a patient on fibromyalgia research. While the government is becoming more involved in funding research, it often takes AFSA or other small funding charities to jump start ideas that move in new directions.

With research grants from AFSA (ranging from $50,000 to $75,000), talented scientists collect information to support their ideas so they may apply to the government or other agencies to continue their studies on fibromyalgia. As more is learned about fibromyalgia, additional intriguing questions are posed, and AFSA’s role in funding research continues to be essential for progress in the field.

Close to 90% of contributions to AFSA go directly to research. AFSA is administered and run by volunteers, eliminating overhead and other large, office expenses. The scientists who review research grant proposals also assist AFSA on a volunteer basis.
Research Goals

Testing therapies that may greatly benefit people with fibromyalgia is a top priority for AFSA. Yet, the goal of better treatments strongly relies upon an improved understanding of what is occurring on a biochemical basis.

With AFSA’s financial assistance, we are hopeful that the following questions can be answered about fibromyalgia:
  • What are the mechanisms involved in producing the body-wide pain?
  • Why do patients wake up from a night’s sleep feeling stiff, achy, and tired? What is happening in the brain at night to make sleep so unrefreshing?
  • How is the extreme fatigue and dyscognition (jumbled thoughts and memory impairments) related to the abnormal physiology of fibromyalgia?
  • To what degree does treatment of muscular knots lead to reduced pain and improved function? What is the most effective therapy for targeting the muscle pain in fibromyalgia patients?
  • Are there medications used for other conditions that should be evaluated for treating people with fibromyalgia?
  • Can laboratory tests be used to accurately identify or diagnose patients? Also, can this information be used to determine disease severity or aid in predicting more successful treatments for individual patients?

Providing answers to the above questions will favorably impact fibromyalgia patients, which is why they form the basis of AFSA’s research-funding goals.

NOTE: As you scan the projects funded to date, none of them focus on the psychological or social aspects of living with a painful and life-disrupting disease. These “soft science” studies won’t bring us closer to effective treatments and are not worthy of your donations.

Why Donate to AFSA?

There are no effective therapies for the unrelenting symptoms of fibromyalgia. This condition is often devastating to both patients and their families. Getting new and talented investigators to enter the field of fibromyalgia is essential for accelerating research and improving treatment options. AFSA’s small grants program offers an opportunity to these dedicated scientists to initiate new studies in fibromyalgia.

When AFSA funded investigators are asked, “What did the AFSA award mean to you?”—many say it was the initial stepping stone that got them started in fibromyalgia research. Most were well known for their work on other painful conditions, but it was funding from AFSA that lured these talented scientists into the field of fibromyalgia.

More effective treatments are key to making fibromyalgia manageable, but this requires your tax deductible donations to research. Join us in our mission to improve the lives of millions with fibromyalgia by helping to fund studies that lead to effective treatments.

The fibromyalgia patient community has been extraordinarily generous throughout the years and are to be commended for their willingness to fund research, yet more donors are needed to accelerate advances in treatments. Help improve the quality of life for millions by making a  donation to AFSA today.

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The American Fibromyalgia Syndrome Association, Inc. (AFSA)
PO Box 32698, Tucson, AZ 85751 • Phone: (520) 733-1570 • Fax: (520) 290-5550
Federal Tax I.D. 77-0355224 • Copyright © 1998-2021

This site is provided for informational purposes only.
Patients should always consult their physician for medical advice and treatment.