The American Fibromyalgia Syndrome Association, Inc.

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AFSA is an all volunteer nonprofit organization dedicated to funding research that investigates the causes and treatments for fibromyalgia syndrome.

A 501(c)3 Nonprofit Charitable Organization.

November 2002 AFSA Update
Volume 9, Issue 1

Download the full November 2002 AFSA Update as a PDF


AFSA Donations Are Impacting Research Directions

As AFSA enters its ninth year of operation, the influence of your donations are widely evident. The projects and the investigators funded by AFSA are making an impact in the medical journals, at scientific meetings, and at The National Institutes of Health (NIH). There is also evidence that the results of AFSA-funded projects are catching the attention of the pharmaceutical industry. Although the projects funded by AFSA are small in size, and many are designed as a stepping stone to larger NIH-funded projects, here is a list of accomplishments made possible by your donations:

  • Eight medical journal articles describing exciting new data from projects funded by AFSA have appeared in the peer-reviewed medical literature over the past two years.
  • Roughly an equal number of articles pertaining to AFSA awards are either "in press" or about to be submitted for publication to provide a continuous stream of medical journal articles highly relevant to fibromyalgia patient issues.
  • Over 35 presentations at major scientific conferences were made by AFSA-funded researchers regarding the outcomes of their projects, beginning in the year 1996 when Daniel Clauw, M.D., presented two posters on autonomic dysfunction in patients with FMS and CFS.
  • At least five AFSA-funded projects helped their principal investigators obtain substantial funding from NIH and other large sources of biomedical research dollars. As more projects near completion, AFSA-funded researchers will be able to use the data from their projects to apply to NIH and other large granting institutions. The end result is that the NIH is spending more money on FMS/CFS-related projects because AFSA is increasing the number of qualified investigators with substantially impressive data to procure NIH grants (typically $200,000 per year for 3-4 years).
  • Several AFSA-funded researchers have written medical science book chapters incorporating their study findings and conclusions, which further educates doctors in training and others interested in the field.
  • The training of new investigators in the field of FMS/CFS has occurred as part of several AFSA-awards. For example, an award that was made to Laurence Bradley, Ph.D., of University of Alabama at Birmingham, to use brain SPECT imaging to show that FMS and CFS are NOT depression has also helped train Leanne Cianfrini, M.S., who is working on her Ph.D. in this field. Serge Marchand, Ph.D., and Pierre Arsenault, M.D., Ph.D., of Canada, were awarded funding by AFSA to evaluate the malfunctioning in the inhibitory pain control system in patients with FMS, as well as study the drug, Effexor. In the process, these two researchers have trained many others to help in their endeavors. Referring to this subject, Marchand says, "We are in the process of expanding our research in the field of fibromyalgia by enlarging our group of people interested in trying to understand the neurophysiological mechanisms of FMS pain.

AFSA is in the process of putting together a special issue of the "Update" to discuss every project funded, the results they produced (if completed) or a progress report (if the project is still in the works), and input from each investigator on the importance of their project, in terms of how it has enhanced (or will enhance) our scientific understanding of FMS. Based on the substantial input that we have received from AFSA-funded investigators so far, we anticipate that this special issue will be 36-40 pages long. We will be mailing this issue to people who have recently contributed to AFSA because we want donors to read first-hand about the significance of their contribution!


Every Dollar Counts!

Our financial summary for the past year (July 1, 2001 to June 30, 2002) appears in the table and pie chart below. Our financials are not complicated. That's because we are all about one thing—funding research. There are no salaries and very little overhead. Our focus, our hearts, our volunteer efforts, and your donations go strictly to finding the cause of and cure for fibromyalgia.

Financial Summary for July 1, 2001 to June 30, 2002
Revenue Expenses
Contributions:
$88,236
Research Grants:
$84,974
Interest & Other:
$1,030
Educational:
$7,442
Note Cards:
$488
Operating Expense:
$4,954
Total Revenue:
$89,781
Total Expenses:
$97,370

A more detailed financial report will be included in the upcoming special issue, and it will soon be posted to this site as well. In the expense column, two research grants were awarded last year. One was to Luc Jasmin, M.D., Ph.D., at UC-San Francisco ($56,925 in July 2001) and the other was to Laurence Bradley, Ph.D., at the University of Alabama at Birmingham ($28,049 in January of 2002). The latest project granted to Patrick Wood, M.D., at LSU ($37,450), does not appear on AFSA's expense report because the award was not made until November of 2002. The educational expense includes the cost of two AFSA Updates to describe projects funded and free information packets that we mail to people inquiring about AFSA. Operating expenses include office supplies, telephone bills, postage expense, and other operating fees. As you can see, our overhead is only 5%, meaning that 95% of all donations go to our mission.

Financial Summary

AFSA began raising funds for research in 1994 and awarded its first two projects in June of 1995. As of June 30, 2002 (our last year-end), AFSA has raised a total of $945,701. We have funded 23 high quality projects with the money raised so far, but our reserves are dipping low. Join us in our goal to reach the million dollar mark so that more patient-relevant projects can be funded in the year to come. Send AFSA your tax-deductible donation today to keep the steady stream of progress going!


AFSA Funds its 23rd Project!

  • Case-controlled study of Proton Spectroscopy in FMS

Visit our Projects Funded section for a detailed description.


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The American Fibromyalgia Syndrome Association, Inc. (AFSA)
PO Box 32698, Tucson, AZ 85751 • Phone: (520) 733-1570 • Fax: (520) 290-5550
Federal Tax I.D. 77-0355224 • Copyright © 1998-2011

This site is provided for informational purposes only.
Patients should always consult their physician for medical advice and treatment.

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